Türkiye’de Otizm Spektrum Bozukluğu Olan Çocuklarda Tamamlayıcı ve Alternatif Tedavilerin Kullanımı ile Bakım Verenlerinde Yaşam Kalitesi, Umutsuzluk, Depresyon ve Aşı Reddi Arasındaki İlişki
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Özgün Araştırma

Türkiye’de Otizm Spektrum Bozukluğu Olan Çocuklarda Tamamlayıcı ve Alternatif Tedavilerin Kullanımı ile Bakım Verenlerinde Yaşam Kalitesi, Umutsuzluk, Depresyon ve Aşı Reddi Arasındaki İlişki

Turk J Child Adolesc Ment Health 2022;29(3):159-166 DOI: 10.4274/tjcamh.galenos.2021.29494
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İzin

Öz

Amaç:

Tamamlayıcı ve alternatif tıp (TAT) yöntemleri, otizm spektrum bozukluğu (OSB) tanısı konulan bireyler için yaygın olarak kullanılmaktadır. Çalışmamızda OSB’li çocuklarda TAT tedavilerinin kullanımının değerlendirilmesi ve OSB’li hastaların bakım verenlerinde TAT tedavi yöntemleri ile umutsuzluk, depresyon ve yaşam kalitesi arasındaki ilişkinin belirlenmesi amaçlanmıştır.

Gereç ve Yöntem:

OSB tanısı olan 126 hasta çalışmaya dahil edildi. Tüm hastalar kullanılan TAT yöntemleri açısından detaylı olarak değerlendirildi. OSB’li çocuğun bakım verenin yaşam kalitesi, depresyon, umutsuzluk ve aşı ile ilgili görüşler açısından değerlendirildi.

Bulgular:

TAT kullanan ve kullanmayan bakım verenler ölçek puanları açısından karşılaştırıldığında fark bulunmadı. TAT uygulanan çocukların ebeveynlerinde aşı reddi daha yaygındı.

Sonuç:

TAT kullanımı tercihinin, bakım verenin yaşam kalitesi, depresyon ve umutsuzluğu ile doğrudan ilişkili olmadığı görülmüştür.

Anahtar Kelimeler: Tamamlayıcı ve alternatif tedavi, otizm spektrum bozukluğu, aşı, yaşam kalitesi, depresyon

Kaynakça

1

American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders- Fifth Edition (DSM-5). American Psychiatric Publishing. Arlington, VA 2013.

2

Lord C, Risi S, DiLavore PS, Shulman C, Thurm A, Pickles A. Autism from 2 to 9 years of age. Arch Gen Psychiatry. 2006;63:694-701.

3

Risi S, Lord C, Gotham K, Corsello C, Chrysler C, Szatmari P, Cook EH Jr, Leventhal BL, Pickles A. Combining information from multiple sources in the diagnosis of autism spectrum disorders. J Am Acad Child Adolesc Psychiatry. 2006;45:1094-1103.

4

Maenner MJ, Shaw KA, Baio J; EdS1, Washington A, Patrick M, DiRienzo M, Christensen DL, Wiggins LD, Pettygrove S, Andrews JG, Lopez M, Hudson A, Baroud T, Schwenk Y, White T, Rosenberg CR, Lee LC, Harrington RA, Huston M, Hewitt A; PhD-7, Esler A, Hall-Lande J, Poynter JN, Hallas-Muchow L, Constantino JN, Fitzgerald RT, Zahorodny W, Shenouda J, Daniels JL, Warren Z, Vehorn A, Salinas A, Durkin MS, Dietz PM. Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2016. MMWR Surveill Summ. 2020;69:1-12.

5

Mazurek MO, Kanne SM, Wodka EL. Physical aggression in children and adolescents with autism spectrum disorders. Research in Autism Spectrum Disorders. 2013;7:455-465.

6

Steinhausen HC, Mohr Jensen C, Lauritsen M. A systematic review and meta‐analysis of the long‐term overall outcome of autism spectrum disorders in adolescence and adulthood. Acta Psychiatr Scand. 2016;133:445-452.

7

Fuentes J, Hervás A, Howlin P; (ESCAP ASD Working Party). ESCAP practice guidance for autism: a summary of evidence-based recommendations for diagnosis and treatment. Eur Child Adolesc Psychiatry. 2021;30:961-984.

8

Health NIo. National Centre for Complementary and Alternative Medicine (NCCAM). Complementary, alternative, or integrative health: What’s in a name. 2008.

9

Barnes PM, Bloom B, Nahin RL. Complementary and alternative medicine use among adults and children: United States, 2007. Natl Health Stat Report. 2008;1-23.

10

Salomone E, Charman T, McConachie H, Warreyn P; Working Group 4, COST Action ‘Enhancing the Scientific Study of Early Autism’. Prevalence and correlates of use of complementary and alternative medicine in children with autism spectrum disorder in Europe. Eur J Pediatr. 2015;174:1277-1285.

11

Owen-Smith AA, Bent S, Lynch FL, Coleman KJ, Yau VM, Pearson KA, Massolo ML, Quinn V, Croen LA. Prevalence and Predictors of Complementary and Alternative Medicine Use in a Large Insured Sample of Children with Autism Spectrum Disorders. Res Autism Spectr Disord. 2015;17:40-51.

12

Bilgiç A, Cöngöloğlu A, Hergüner S, Türkoğlu S, Bahali K, Gürkan K, Durukan İ, Türkbay T. Use of Complementary and Alternative Medicine in Children with Autism Spectrum Disorders: A Multicenter Study. Noro Psikiyatr Ars. 2013;50:237-243.

13

The National Center for Complementary and Alternative Medicine. Available from: https://www.nccih.nih.gov/health/complementary-alternative-or-integrative-health-whats-in-a-name.

14

Lofthouse N, Hendren R, Hurt E, Arnold LE, Butter E. A review of complementary and alternative treatments for autism spectrum disorders. Autism Res Treat. 2012;2012:870391.

15

Millward C, Ferriter M, Calver SJ, Connell-Jones GG. WITHDRAWN: Gluten- and casein-free diets for autistic spectrum disorder. The Cochrane database of systematic reviews. 2019;4:CD003498.

16

Silva LM, Schalock M, Gabrielsen K. Early intervention for autism with a parent-delivered qigong massage program: A randomized controlled trial. Am J Occup Ther. 2011;65:550-559.

17

Holm MB, Baird JM, Kim YJ, Rajora KB, D'Silva D, Podolinsky L, Mazefsky C, Minshew N. Therapeutic horseback riding outcomes of parent-identified goals for children with autism spectrum disorder: an ABA' multiple case design examining dosing and generalization to the home and community. J Autism Dev Disord. 2014;44:937-947.

18

Höfer J, Hoffmann F, Bachmann C. Use of complementary and alternative medicine in children and adolescents with autism spectrum disorder: a systematic review. Autism. 2017;21:387-402.

19

Cohrs AC, Leslie DL. Depression in parents of children diagnosed with autism spectrum disorder: A claims-based analysis. J Autism Dev Disord. 2017;47:1416-1422.

20

Kütük MÖ, Tufan AE, Kılıçaslan F, Güler G, Çelik F, Altıntaş E, Gökçen C, Karadağ M, Yektaş Ç, Mutluer T, Kandemir H, Büber A, Topal Z, Acikbas U, Giray A, Kütük Ö. High Depression Symptoms and Burnout Levels Among Parents of Children with Autism Spectrum Disorders: A Multi-Center, Cross-Sectional, Case-Control Study. J Autism Dev Disord. 2021;51:4086-4099.

21

An S, Kanderzhanova A, Akhmetova A, Foster F, Chan CK. “Chasing hope”: Parents’ perspectives on complementary and alternative interventions for children with autism in Kazakhstan. Autism. 2020;24:1817-1828.

22

Wakefield AJ, Murch SH, Anthony A, Linnell J, Casson DM, Malik M, Berelowitz M, Dhillon AP, Thomson MA, Harvey P, Valentine A, Davies SE, Walker-Smith JA. Ileal-lymphoid-nodular hyperplasia, non-specific colitis, and pervasive developmental disorder in children. Lancet. 1998;351:637-641.

23

DeStefano F, Chen RT. Negative association between MMR and autism. Lancet. 1999;353:1987-1988.

24

Hornig M, Briese T, Buie T, Bauman ML, Lauwers G, Siemetzki U, Hummel K, Rota PA, Bellini WJ, O'Leary JJ, Sheils O, Alden E, Pickering L, Lipkin WI. Lack of association between measles virus vaccine and autism with enteropathy: a case-control study. PLoS One. 2008;3:e3140.

25

Dales L, Hammer SJ, Smith NJ. Time trends in autism and in MMR immunization coverage in California. JAMA. 2001;285:1183-1185.

26

Fombonne E, Goin-Kochel RP, O'Roak BJ; SPARK Consortium. Beliefs in vaccine as causes of autism among SPARK cohort caregivers. Vaccine. 2020;38:1794-1803.

27

Hanson E, Kalish LA, Bunce E, Curtis C, McDaniel S, Ware J, Petry J. Use of complementary and alternative medicine among children diagnosed with autism spectrum disorder. J Autism Dev Disord. 2007;37:628-636.

28

Salomone E, Charman T, McConachie H, Warreyn P; Working Group 4, COST Action ‘Enhancing the Scientific Study of Early Autism’. Prevalence and correlates of use of complementary and alternative medicine in children with autism spectrum disorder in Europe. Eur J Pediatr. 2015;174:1277-1285.

29

Eapen V, Črnčec R, Walter A, Tay KP. Conceptualisation and development of a quality of life measure for parents of children with autism spectrum disorder. Autism Res Treat. 2014;2014:160783.

30

Gürbüz Özgür B, Aksu H, Eser E. Turkish validity and reliability of quality of life in autism questionnaire-parent version. Alpha Psychiatry. 2017;18:344-352.

31

Beck AT, Steer RA, Brown G. Beck depression inventory–II. Psychological Assessment. 1996.

32

Hisli N. Beck Depresyon Envanterinin Geçerliliği Üzerine Bir Çalışma. Psikoloji Dergisi. 1988;6:118-122.

33

Hisli N. Beck Depresyon Envanterinin Üniversite Öğrencileri İçin Geçerliliği, Güvenilirliği. Psikoloji Dergisi. 1989;7:3-13.

34

Beck AT, Weissman A, Lester D, Trexler L. The measurement of pessimism: the hopelessness scale. J Consult Clin Psychol. 1974;42:861-865.

35

Durak A, Palabıyıkoğlu R. Beck Umutsuzluk Ölçeği Geçerlilik Çalışması. Kriz Dergisi. 1994;2:311-319.

36

Granich J, Hunt A, Ravine D, Wray J, Whitehouse AJ. High use of complementary and alternative medication among children with autism is not associated with the severity of core symptoms. Journal of Autism. 2014;1:4.

37

Hall SE, Riccio CA. Complementary and alternative treatment use for autism spectrum disorders. Complement Ther Clin Pract. 2012;18:159-163.

38

Levy SE, Mandell DS, Merhar S, Ittenbach RF, Pinto-Martin JA. Use of complementary and alternative medicine among children recently diagnosed with autistic spectrum disorder. J Dev Behav Pediatr. 2003;24:418-423.

39

Akins RS, Krakowiak P, Angkustsiri K, Hertz-Picciotto I, Hansen RL. Utilization patterns of conventional and complementary/alternative treatments in children with autism spectrum disorders and developmental disabilities in a population-based study. J Dev Behav Pediatr. 2014;35:1-10.

40

Christon LM, Mackintosh VH, Myers BJ. Use of complementary and alternative medicine (CAM) treatments by parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders. 2010;4:249-259.

41

Wong HH, Smith RG. Patterns of complementary and alternative medical therapy use in children diagnosed with autism spectrum disorders. J Autism Dev Disord. 2006;36:901-909.

42

Taylor JL, Warren ZE. Maternal depressive symptoms following autism spectrum diagnosis. Autism Dev Disord. 2012;42:1411-1418.

43

Zablotsky B, Anderson C, Law P. The association between child autism symptomatology, maternal quality of life, and risk for depression. J Autism Dev Disord. 2013;43:1946-1955.

44

The Ministry of Health of Turkey. (2019). Health Statistics Yearbook 2018. https://dosyasb.saglik.gov.tr/Eklenti/36164 sepp.

45

Ernst E. Rise in popularity of complementary and alternative medicine: reasons and consequences for vaccination. Vaccine. 2001;20:S90-93.

46

Zuzak TJ, Zuzak-Siegrist I, Rist L, Staubli G, Simoes-Wüst AP. Attitudes towards vaccination: users of complementary and alternative medicine versus non-users. Swiss Med Wkly. 2008;138:713-718.

47

DeFilippis M. The use of complementary alternative medicine in children and adolescents with autism Spectrum disorder. Psychopharmacol Bull. 2018;48:40-63.