Öz
Amaç:
Bu çalışmanın amacı; kanserli çocuklar için uyku değerlendirme ölçeği adölesan ve ebeveyn formunun geliştirilmesi, geçerlilik ve güvenirliğinin değerlendirilmesidir.
Gereç ve Yöntem:
Bu çalışmanın örneklemini 12-18 yaş arası iki hastanenin Onkoloji Kliniğinde yatmakta olan ve polikliniğe başvuru yapmış olan 147 ergen ve ebeveyni oluşturmaktadır. Ölçeğin kapsam geçerliliği, çocuk onkoloji ve hematoloji alanlarından 16 uzmanın görüşüne başvurularak değerlendirilmiştir. Verilerin analizinde sayı/ yüzde, t-testi, korelasyon analizi, Cronbach α güvenirlik katsayısı ve faktör analizi yöntemleri kullanılmıştır.
Bulgular:
Doğrulayıcı faktör analizi sonucunda ergen formunda uyum indeksleri, root mean squared error of approximation (RMSEA)=0,04, comparative fit index (CFI)=0,97, non-normed fit index (NNFI)=0,96 ve NFI=0,89 ve Ebeveyn Formunda ise RMSEA=0,06, CFI=0,95, NNFI=0,94 ve NFI=0,87 olarak bulunmuştur. Cronbach α güvenirlik katsayısı ergen formu için 0,87, ebeveyn formu için ise 0,86 olarak bulunmuştur.
Sonuç:
Yapılan analizler ve değerlendirmeler sonucu kanserli çocuklar için uyku değerlendirme ölçeği ergen ve ebeveyn formunun, geçerlik ve güvenirliği yüksek bulunmuştur. Bu sonuçlar geliştirilen ölçeğin Türkiye’de yapılacak araştırmalar için geçerli ve güvenilir bir ölçüm aracıdır.
Anahtar Kelimeler: Ergen, kanser, uyku, geçerlik, güvenirlik
Kaynakça
Stubbs RM. A review of attachment theory and internal working models as relevant to music therapy with children hospitalized for life threatening illness. Arts Psychother. 2018;57:72-79.
Rosenkranz E, Thissen A, Siegel S, Piroth M, Clusmann H, Gebauer J, Brabant G, Kreitschmann-Andermahr I. Melatonin secretion following brain midline irradiation is diminished, but not correlated with subjective sleep disturbances. Clin Endocrinol (Oxf). 2018;89:870-877.
Orsey AD, Wakefield DB. Does socioeconomic status impact physical activity and sleep among children with cancer?. Pediatr Blood Cancer. 2016;63:2004-2010.
Nolan VG, Gapstur R, Gross CR, Desain LA, Neglia JP, Gajjar A, Klosky JL, Merchant TE, Stovall M, Ness KK. Sleep disturbances in adult survivors of childhood brain tumors. Qual Life Res. 2013;22:781-789.
Yotani N, Kizawa Y. Specialist Palliative Care Service for Children With Life-Threatening Conditions: A Nationwide Survey of Availability and Utilization. J Pain Symptom Manage. 2018;56:582-587.
Kwekkeboom KL, Abbott-Anderson K, Cherwin C, Roiland R, Serlin RC, Ward SE. Pilot randomized controlled trial of a patient-controlled cognitive-behavioral intervention for the pain, fatigue, and sleep disturbance symptom cluster in cancer. J Pain Symptom Manage. 2012;44:810-822.
Wu WW, Jou ST, Liang SY, Tsai SY. The Mediating Role of Exercise on Relationships Between Fatigue, Sleep Quality, and Quality of Life for Adolescents With Cancer. Cancer Nurs. 2019;42:E10-E19.
Frey NP, Davis EP. Launch and commissioning the deep space climate observatory. Adv Astronaut Sci. 2016;157:999–1010.
Walter LM, Nixon GM, Davey MJ, Downie PA, Horne RSC. Sleep and fatigue in pediatric oncology : A review of the literature, Sleep Med Rev. 2017;24:71-82.
Rosen G, Brand SR. Sleep in children with cancer: case review of 70 children evaluated in a comprehensive pediatric sleep center. Support Care Cancer. 2011;19:985-994.
Jacobs S, Mowbray C, Cates LM, Baylor A, Gable C, Skora E, Estrada M, Cheng Y, Wang J, Lewin D, Hinds P. Pilot Study of Massage to Improve Sleep and Fatigue in Hospitalized Adolescents With Cancer. Pediatr Blood Cancer. 2016;63:880-886.
Graef DM, Crabtree VM, Srivastava DK, Li C, Pritchard M, Hinds PS, Mandrell B. Sleep and mood during hospitalization for high-dose chemotherapy and hematopoietic rescue in pediatric medulloblastoma. Psychooncology. 2018;27:1847-1853.
van Kooten JAMC, Maurice-Stam H, Schouten AYN, van Vuurden DG, Granzen B, Gidding C, de Ruiter MA, van Litsenburg RRL, Grootenhuis MA. High occurrence of sleep problems in survivors of a childhood brain tumor with neurocognitive complaints: The association with psychosocial and behavioral executive functioning. Pediatr Blood Cancer. 2019;66:e27947.
Verberne LM, Maurice-Stam H, Grootenhuis MA, Van Santen HM, Schouten-Van Meeteren AY. Sleep disorders in children after treatment for a CNS tumour. J Sleep Res. 2012;21:461-469.
Nakajima S, Suzuki M, Kaneko Y, Kobayashi M, Igarashi T, Gon Y, Yoshino A, Uchiyama M. Irregular sleep–wake cycle associated with malignant brain tumor in an adolescent. Sleep Biol Rhythms. 2019;17:459–461.
Chung MH, Wang SY, Lin CC. Symptom Clusters and Impact of Fatigue and Sleep Disturbance on Symptom Experiences of Hepatoma Patients in Taiwan. Cancer Nurs. 2017;40:403-411.
Allen JM, Graef DM, Ehrentraut JH, Tynes BL, Crabtree VM. Sleep and Pain in Pediatric Illness: A Conceptual Review. CNS Neurosci Ther. 2016;22:880-893.
Cheung YT, Brinkman TM, Mulrooney DA, Mzayek Y, Liu W, Banerjee P, Panoskaltsis-Mortari A, Srivastava D, Pui CH, Robison LL, Hudson MM, Krull KR. Impact of sleep, fatigue, and systemic inflammation on neurocognitive and behavioral outcomes in long-term survivors of childhood acute lymphoblastic leukemia. Cancer. 2017;123:3410-3419.
Crabtree VM, Rach AM, Schellinger KB, Russell KM, Hammarback T, Mandrell BN. Changes in sleep and fatigue in newly treated pediatric oncology patients. Support Care Cancer. 2015;23:393-401.
Şenol V, Soyuer F, Akça R. The Sleep Quality in Adolescents and the Factors that Affect It. Kocatepe Tıp Dergisi. 2012;93-102.
Allen JM, Graef DM, Ehrentraut JH, Tynes BL, Crabtree VM. Sleep and Pain in Pediatric Illness: A Conceptual Review. CNS Neurosci Ther. 2016;22:880-893.
Frey NP, Davis EP. Launch and commissioning the deep space climate observatory, Adv Astronaut Sci. 2016;157:999-1010.
Mann-Jiles V, Thompson K, Lester J. Sleep impairment and insomnia in sickle cell disease: a retrospective chart review of clinical and psychological indicators. J Am Assoc Nurse Pract. 2015;27:441-449.
Hooke MC, McCarthy K, Taylor O, Hockenberry MJ. Fatigue and carnitine levels over multiple cycles of chemotherapy in children and adolescents. Eur J Oncol Nurs. 2015;19:7-12.
Dyer J, Cleary L, McNeill S, Ragsdale-Lowe M, Osland C. The use of aromasticks to help with sleep problems: A patient experience survey. Complement Ther Clin Pract. 2016;22:51-58.
Walker AJ, Johnson KP, Miaskowski C, Lee KA, Gedaly-Duff V. Sleep quality and sleep hygiene behaviors of adolescents during chemotherapy. J Clin Sleep Med. 2010;6:439-444.
Joshi A, Kale S, Chandel S, Pal D. Likert Scale: Explored and Explained, Br J Appl Sci Technol. 2015;7:396–403.
Karakoç AGDFY, Dönmez PDL. Ölçek Geliştirme Çalışmalarında Temel İlkeler. Tıp Eğitimi Dünyası. 2014;13:39–49.
Li Q. A novel Likert scale based on fuzzy sets theory. Expert Syst Appl. 2013;40:1609-1618.
Yeşilyurt S, Çapraz C. Ölçek Geliştirme Çalışmalarında Kullanılan Kapsam Geçerliği İçin Bir Yol Haritası, Erzincan Üniversitesi Eğitim Fakültesi Derg. 2018;251-264.
Witkovský V. Computing the exact distribution of the Bartlett’s test statistic by numerical inversion of its characteristic function. J Appl Stat. 2019;47:2749-2764.
Orcan F. Exploratory and Confirmatory Factor Analysis: Which One to Use First?. Eğitimde ve Psikolojide Ölçme ve Değerlendirme Derg. 2018;414-421.
Howard MC. A Review of Exploratory Factor Analysis Decisions and Overview of Current Practices: What We Are Doing and How Can We Improve? Int J Hum Comput Interact. 2016;32:51-62.
de Bruin EJ, van Kampen RK, van Kooten T, Meijer AM. Psychometric properties and clinical relevance of the adolescent sleep hygiene scale in Dutch adolescents. Sleep Med. 2014;15:789-797.
Moo-Estrella JA, Valencia-Flores M, Arankowsky-Sandoval, Margarita G. Development and validation of the Sleep Disturbances Scale for School-age Children. Acta Pediatr Mex. 2018;39:121-133.
Lewandowski AS, Toliver-Sokol M, Palermo TM. Evidence-based review of subjective pediatric sleep measures. J Pediatr Psychol. 2011;36:780-793.
Spilsbury JC, Drotar D, Rosen CL, Redline S. The Cleveland adolescent sleepiness questionnaire: a new measure to assess excessive daytime sleepiness in adolescents. J Clin Sleep Med. 2007;3:603-612.
Short MA, Gradisar M, Gill J, Camfferman D. Identifying adolescent sleep problems. PLoS One. 2013;8:e75301.
Storfer-Isser A, Lebourgeois MK, Harsh J, Tompsett CJ, Redline S. Psychometric properties of the Adolescent Sleep Hygiene Scale. J Sleep Res. 2013;22:707-716.
Janssen KC, Phillipson S, O’Connor J, Johns MW. Validation of the Epworth Sleepiness Scale for Children and Adolescents using Rasch analysis. Sleep Med. 2017;33:30-35.
Meltzer LJ, Brimeyer C, Russell K, Avis KT, Biggs S, Reynolds AC, Crabtree VM. The Children’s Report of Sleep Patterns: validity and reliability of the Sleep Hygiene Index and Sleep Disturbance Scale in adolescents. Sleep Med. 2014;15:1500-1507.
Spruyt K, Gozal D. Pediatric sleep questionnaires as diagnostic or epidemiological tools: a review of currently available instruments. Sleep Med Rev. 201;15:19-32.
Flora DB, Flake JK. The purpose and practice of exploratory and confirmatory factor analysis in psychological research: Decisions for scale development and validation. Can J Behav Sci. 2017;49:78–88.
Gliem J, Gliem R. Calculating, Interpreting, and Reporting Cronbach’s Alpha Reliability Coefficient for Likert-Type Scales. In: 2003 Midwest Research to Practice Conference in Adult, Continuing, and Community Education. 2003. p. 82–88.
Taber KS. The Use of Cronbach’s Alpha When Developing and Reporting Research Instruments in Science Education. Res Sci Educ. 2018;48:1273-1296.
Işık E, Fadıloğlu Ç, Demir Y. Ölüme Karşı Tutum Ölçeğinin Türkçe Çevirisinin Hemşire Populasyonunda Geçerlik ve Güvenilirlik Çalışması. Hemşirelikte Araştirma Geliştirme Dergisi. 2009;11:28-43.
Tavşancıl E. Tutumların ölçülmesi ve SPSS ile veri analizi. In: Nobel Yayıncılık, Ankara. 2002. p. 5-6.
