A Field Study on the Relationship Between Children with Disabled Sibling and Their Mothers
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Original Article
P: 33-39
March 2020

A Field Study on the Relationship Between Children with Disabled Sibling and Their Mothers

Turk J Child Adolesc Ment Health 2020;27(1):33-39
1. Atatürk Üniversitesi Oltu Beşeri ve Sosyal Bilimler Fakültesi, Sosyal Hizmet Anabilim Dalı, Erzurum, Türkiye
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Received Date: 13.12.2019
Accepted Date: 17.02.2020
Publish Date: 22.03.2020
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ABSTRACT

Objectives:

The presence of a disabled child in the family affects the interactions between the sub-systems such as spouses, parents, siblings and the functionality of the family system. The aim of this study is to evaluate the relationships of children who have disabled sibling with their mothers and to make inferences for strengthening these relationships.

Materials and Methods:

Embedded research design, which is one of the mixed research methods in which quantitative method is supported by qualitative method, was used in the study. A sample consisted of all target groups (mother-child). One-to-one interviews were conducted with 40 disabled mothers by simple random sampling method and 3 disabled siblings from three different development periods by maximum diversity sampling method. The mother/child interview forms used in the study consisted of family identification information, mother-child relationship scale and open-ended questions. The data of the study were analyzed with IBM Statistics 22 program, frequency and percentage distributions and hypothesis tests were used to compare some variables. In order to analyze the data, 0.05 significance level was used.

Results:

According to the answers given to the mother-child relationship scale items, the presence of a disabled child in the family negatively affects the mother-child relationship patterns. The mother-child relationship is significantly lower, especially when sibling is a female (sig=0.039, p<0.05) and older than a disabled child (sig=0.001, p<0.05).

Conclusion:

The relationship between mother and child in disabled families is affected by the presence of a disabled child, unlike typical families. In our country, older daughters share most of the care and responsibility of their siblings with their mothers and this influences the mother-child relationship negatively. At the end of the study, services and intervention suggestions were presented to support the relationships between children with disabled siblings and their mothers.

References

1Rivers JW, Stoneman Z. Sibling Relationships When a Child Has Autism: Marital Stress and Support Coping. J Autism Dev Disord. 2003;33:383-394.
2McMillan E. A Parent’s Perspective. Ment Retard. 2005;43:351-353.
3Swenson S. Families, Research, and Systems Change. Ment Retard. 2005;43:365-368.
4Biggins M. Siblings of children with disabilities., University of Lethbridge. Faculty of Education; 1997.
5Ross P, Cuskelly M. Adjustment, Sibling Problems and Coping Strategies of Brothers and Sisters of Children with Autistic Spectrum Disorder. J Intellect Dev Disabil. 2006;31:77-86.
6Knott F, Lewis C, Williams T. Sibling Interaction of Children with Learning Disabilities: A Comparison of Autism and Down’s Syndrome. J Child Psychol Psychiatry. 1995;36:965-976.
7Siblings of Children with Special Needs, http://siblingsaustralia.org.au/wp-content/uploads/2017/09/Learning-Links article.pdf.%20(Eri%C5%9Fim%20Tarihi:%20A%C4%9Fustos%202019). 2002.
8Barak-Levy Y, Goldstein E, Weinstock M. Adjustment Characteristics of Healthy Siblings of Children with Autism. Journal of Family Studies. 2010;16:155-164.
9Seltzer MM, Greenberg JS, Krauss MW, Gordon R, Judge K. Siblings of Adults with Mental Retardation or Mental Illness: Effects on Lifestyle and Psychological Well-being. Family Relations. 1997;46:395-405.
10Orsmond GI, Seltzer MM. Brothers and Sisters of Adults with Mental Retardation: Gendered Nature of The Sibling Relationship. Am J Ment Retard. 2000;105:486-508.
11Pruchno RA, Patrick, JH, Burant CJ. Aging Women and Their Children with Chronic Disabilities: Perceptions of Sibling Involvement and Effects on Well-being. Family Relations. 1996;45:318-326.
12Hodapp RM, Glidden LM, Kaiser AP. Siblings of Persons with Disabilities: Toward a Research Agenda, Ment Retard. 2005;43:334-338.
13Orsmond GI, Seltzer MM. Siblings of Individuals with Autism Spectrum Disorders Across the Life Course. Ment Retard Dev Disabil Res Rev. 2007;13:313-320.
14Rossiter L, Sharpe D. The Siblings of Individuals with Mental Retardation: A Quantitative Integration of the Literature. J Child Fam Stud. 2001;10:65-84.
15Fisman S, Wolf L, Ellison D, Gillis B, Freeman TOM, Szatmari P. Risk and Protective Factors Affecting the Adjustment of Siblings of Children with Chronic Disabilities. J Am Acad Child Adolesc Psychiatry. 1996;35:1532-1541.
16Smith MK. Recovery from a Severe Psychiatric Disability: Findings of a Qualitative Study. Psychiatric Rehabilitation Journal. 2000;24:149-158.
17Hastings RP. Brief Report: Behavioral Adjustment of Siblings of Children with Autism. J Autism Dev Disord. 2003;33:99-104.
18Bågenholm A, Gillberg C. Psychosocial Effects on Siblings of Children with Autism and Mental Retardation: A Population‐based Study. J Ment Defic Res. 1991;35:291-307.
19Gold N. Depression and Social Adjustment in Siblings of Boys with Autism. J Autism Dev Disord. 1993;23:147-163.
20Rodrigue JR, Geffken GR, Morgan SB. Perceived Competence and Behavioral Adjustment of Siblings of Children with Autism. J Autism Dev Disord. 1993;23:665-674.
21Kaminsky L, Dewey, D. Siblings Relationships of Children with Autism. J Autism Dev Disord. 2001;31:399-410.
22McHale SM, Gamble WC. Sibling Relationships and Adjustment of Children with Disabled Brothers and Sisters. Journal of Children in Contemporary Society. 1998;19:131-158.
23Derouin D, Jessee PO. Impact of a Chronic Illness in Childhood: Siblings’ Perceptions. Issues Compr Pediatr Nurs. 1996;19:135-147.
24Mandleco B, Olsen SF, Dyches T, Marshall E. The Relationship Between Family and Sibling Functioning in Families Raising a Child with a Disability. Journal of Family Nursing. 2003;9:365-396.
25Baumann SL, Dyches TT, Braddick M. Being a Sibling. Nurs Sci Q. 2005;18:51-58.
26Hornby G. Counseling in child disability. Skills for working with parents. International Journal for the Advancement of Counselling. 1994;22:331-334.
27McCubbin H, Patterson JM. The Family Stress Process: The Double ABCX Model of Adjustment and Adaptation. Marriage&Family Review. 1983;6:7-37.
28Heiman T. Parents of Children with Disabilities: Resilience, Coping, and Future Expectations. J Dev Phys Disabil. 2002;14:159-171.
29Nixon CL, Cummings EM. Sibling Disability and Children’s Reactivity to Conflicts Involving Family Members. Journal of Family Psychology. 1999;13:274-285.
30Dyson L, Edgar E, Crnic K. Psychological Predictors of Adjustment by Siblings of Developmentally Disabled Children. Am J Ment Retard. 1989;94:292-302.
31Dervishaliaj E, Murati E. Families of Children with Developmental Disabilities: Perceptions and Experiences of Adolescent Siblings of Children with Developmental Disabilities. European Scientific Journal. 2014;10:129-142.
32Skotko BG, Levine SP. What the Other Children Are Thinking: Brothers and Sisters of Persons with Down Syndrome. Am J Med Genet C Semin Med Genet. 2006;142:180-186.
33Lobato DJ, Miller CT, Barbour L, Hall LJ, Pezzullo J. Preschool Siblings of Handicapped Children: Interactions with Mothers, Brothers, and Sisters. Res Dev Disabil. 1991;12:387-399.
34Nelson M, Ruch S, Jackson Z, Bloom L, Part R. Towards an Understanding of Families with Physically Disabled Adolescents. Soc Work Health Care. 1992;17:1-25.
35Pit-Ten Cate IM, Loots GM. Experiences of siblings of children with physical disabilities: An empirical investigation. Disabil Rehabil. 2000;22:399-408.
36Brody GH. Sibling Relationship Quality: Its Causes and Consequences. Annu Rev Psychol. 1998;49:1-24.
37Brody GH. Siblings’ Direct and Indirect Contributions to Child Development. Current Directions in Psychological Science. 2004;13:124-126.
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